The DESSH Foundation is proud to announce it will create a team of DESSH parents to pursue the second cycle of the Chan Zuckerberg Initiative's Rare As One Project grant. If you have interest in participating, please reach out to Caitlin Piccirillo at curedessh.org@gmail.com. A brief synopsis of the grant and link to the project page can be found below.
"At the Chan Zuckerberg Initiative (CZI), we believe in supporting and leveraging the power of patients to accelerate research and drive progress against rare diseases. That’s why—with continued guidance from patient communities, rare disease experts, and advocacy organizations—we are continuing, through the Rare As One Project, to lift up the work of patient communities and scale a model in which patients, researchers, clinicians, and others work together to advance progress against their diseases."
To read on, please visit Rare As One Network RFA - Chan Zuckerberg Initiative and click the Opportunity tab.
