DESSH Scientific Tools Have Great Treatment Potential

I attended the Rare Advocacy Development Brain Workshop alongside DESSH researcher Alyssa Bierstedt for a 3-day intensive on bringing treatments for rare genetic neurodevelopmental disorders from diagnosis to treatment. Here is what I learned and what our community should do next to keep progress moving forward! To join a working group to "get after it" email me at Caitlin@dessh.org.

-Caitlin Piccirillo, Co-Founder and Executive Director

PS - this is the presentation I gave at our board meeting. The last 15 minutes or so include discussion. Content has been trimmed for timing!