UPCOMING EVENTS

DASH FOR DESSH 2021

Virtual 5k

2020 will soon be over and to kick-off 2021 the right way, The DESSH Foundation invites you to run in the Dash for DESSH 2021 - and this year we are going virtual! It's important that we remain socially distant, but also that we include the many DESSH supporters around the world! The race can be run, walked, hopped, biked, pogo-sticked, skateboarded, or whatever other mode of non-motorized transport you would like to get the whole family involved!

Running Children
 

PAST EVENTS

DESSH FAMILY CONFERENCE

In conjunction with the American Society of Human Genetics Annual Meeting

DESSH families from across the U.S. descended on the American Society of Human Genetics annual meeting in Houston, TX. Families raised awareness at our DESSH advocacy booth on the exhibit hall floor and spent a day sharing and learning from one another's challenges during dedicated DESSH sessions.

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SONGS FOR DESSH

Local musicians from the Sussex County community volunteered their time and talent to raise funds for our cause.  The impressive list of artists included professional Broadway and opera performers and soloists from the Sussex County Oratorio Society. The Glen Meadow Middle School Chorus even joined in on the fun! Songs ranged from jazz to pop and from acapella to a four piece band!

 

DASH 4 DESSH

Making a difference was a walk in the park! Over 100 walkers participated in our inaugural Dash 4 DESSH, an awareness walk and fundraiser for DeSanto-Shinawi Syndrome research. Through their support and the support of our sponsors, we raised more than $3,000 in net proceeds.

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+1 (718) 406-3842

3 Higgins Drive
Vernon, NJ 07462

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DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.