December 3, 2019
RARE DISEASE DAY
February 29, 2020
DESSH FAMILY CONFERENCE
In conjunction with the American Society of Human Genetics Annual Meeting
DESSH families from across the U.S. descended on the American Society of Human Genetics annual meeting in Houston, TX. Families raised awareness at our DESSH advocacy booth on the exhibit hall floor and spent a day sharing and learning from one another's challenges during dedicated DESSH sessions.
SONGS FOR DESSH
Local musicians from the Sussex County community volunteered their time and talent to raise funds for our cause. The impressive list of artists included professional Broadway and opera performers and soloists from the Sussex County Oratorio Society. The Glen Meadow Middle School Chorus even joined in on the fun! Songs ranged from jazz to pop and from acapella to a four piece band!
DASH 4 DESSH
Making a difference was a walk in the park! Over 100 walkers participated in our inaugural Dash 4 DESSH, an awareness walk and fundraiser for DeSanto-Shinawi Syndrome research. Through their support and the support of our sponsors, we raised more than $3,000 in net proceeds.