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    Happy Family

    THE DESSH FOUNDATION

    Committed to Curing DeSanto-Shinawi Syndrome

     

    WHO WE ARE AND WHAT WE DO

    DeSanto-Shinawi Syndrome is a newly discovered genetic disorder characterized by developmental delay, hypotonia, behavioral problems, intellectual disability, feeding difficulty, and seizures. 


    The DeSanto Shinawi community was created to help identify new patients, promote further research, and raise funds to aid in the treatment and cure of DESSH. 

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    OUR STORIES

    Life with a child who has DESSH is a beautiful adventure; a journey of challenges and triumphs. Let us share ours with you.

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    STUDIES AND RESEARCH

    The first studies identifying the WAC gene mutation were published in 2014. Continuing research in genetics and specifically the WAC gene is paramount to find a cure.

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    Donating Money

    DONATE

    One of our goals is to further our cause through ongoing research. With your generous donations and fundraising efforts, you have the capacity to help us in our endeavor to cure DESSH. Check back for upcoming fundraising events.

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    EVENTS

    Keep current with the latest upcoming DESSH events and become a sponsor.

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    MAILING LIST

    Sign up for our mailing list and keep up with all of the latest DESSH Foundation news, including research, upcoming events, and more!

     
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    CONTACT US

    Thanks for submitting!

     
     

    THE DESSH FOUNDATION

    cureDESSH.org@gmail.com

    +1 (718) 406-3842

    3 Higgins Drive
    Vernon, NJ 07462

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    DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.