Happy Family

DESANTO SHINAWI SYNDROME

Unique With A Common Thread

 
Hands Up

WHO WE ARE AND WHAT WE DO

DeSanto Shinawi Syndrome is a newly discovered genetic disorder characterized by developmental delay, hypotonia, behavioral problems, intellectual disability, feeding difficulty and seizures. The DeSanto Shinawi community was created to help identify new patients, promote further research, and raise funds to aid in the treatment and cure of DESSH. 

 

CONNECT WITH US

 
Helping Hands

CONTACT US

 
 

+1 (718) 406-3842

3 Higgins Drive
Vernon, NJ 07462

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DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.