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3 Higgins Drive
Vernon, NJ 07462

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DESANTO SHINAWI SYNDROME

Unique With A Common Thread

 

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WHO WE ARE AND WHAT WE DO

DeSanto Shinawi Syndrome is a newly discovered genetic disorder characterized by developmental delay, hypotonia, behavioral problems, intellectual disability, feeding difficulty and seizures. The DeSanto Shinawi community was created to help identify new patients, promote further research, and raise funds to aid in the treatment and cure of DESSH. 

 
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