Happy Family

THE DESSH FOUNDATION

Committed to Curing DeSanto-Shinawi Syndrome

 

WHO WE ARE AND WHAT WE DO

DeSanto-Shinawi Syndrome is a newly discovered genetic disorder characterized by developmental delay, hypotonia, behavioral problems, intellectual disability, feeding difficulty, and seizures. 


The DeSanto Shinawi community was created to help identify new patients, promote further research, and raise funds to aid in the treatment and cure of DESSH. 

 
 
Team Meeting

COME WORK WITH US

Volunteer Your Time and Talent

Thanks for applying! We’ll be in touch soon.