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Rare People - The Research Charity launches with the goal to support DESSH clinical trial in the UK.
To learn more, read the below note from the Founder and Chair of Trustees, Rob Galloway.
Caitlin Piccirillo
Oct 141 min read
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The DESSH Foundation hosts first-ever DESSH Clinic at Washington University in St. Louis
Original story can be found at First-ever DESSH clinic (wustl.edu).
Caitlin Piccirillo
Apr 21, 20231 min read
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Why should my loved one participate in patient research?
You may find the answer to this question is an obvious one: to advance science in order to cure DeSanto-Shinawi Syndrome. On the other...
Caitlin Piccirillo
Apr 21, 20232 min read
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CZI's Rare As One Project Accepting Grant Applications!
The DESSH Foundation is proud to announce it will create a team of DESSH parents to pursue the second cycle of the Chan Zuckerberg...
Caitlin Piccirillo
Apr 21, 20231 min read
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