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Rare People - The Research Charity launches with the goal to support DESSH clinical trial in the UK.

Writer: Caitlin Piccirillo
Caitlin Piccirillo
Oct 14, 2025
1 min read

Updated: Oct 24, 2025

To learn more, read the below note from the Founder and Chair of Trustees, Rob Galloway.



 
 
 

1 Comment


crazymeercat515228
Sep 04

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THE DESSH FOUNDATION

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info@dessh.org       3 Higgins Drive   |  Vernon, NJ 07462

DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.

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