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Why should my loved one participate in patient research?
You may find the answer to this question is an obvious one: to advance science in order to cure DeSanto-Shinawi Syndrome. On the other...
Caitlin Piccirillo
Apr 21, 2023
2 min read
CZI's Rare As One Project Accepting Grant Applications!
The DESSH Foundation is proud to announce it will create a team of DESSH parents to pursue the second cycle of the Chan Zuckerberg...
Caitlin Piccirillo
Apr 21, 2023
1 min read
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