Caitlin PiccirilloApr 21, 20232 minWhy should my loved one participate in patient research?You may find the answer to this question is an obvious one: to advance science in order to cure DeSanto-Shinawi Syndrome. On the other...
Caitlin PiccirilloApr 21, 20231 minCZI's Rare As One Project Accepting Grant Applications!The DESSH Foundation is proud to announce it will create a team of DESSH parents to pursue the second cycle of the Chan Zuckerberg...