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Rare in Full Colour Collection

Artist

Evelyn Iris, Age 4

Project type

Acrylic on Canvas

Location

Portugal

Place a Bid

Visit our online silent auction to bid for selections from our show now through March 7th! https://dessh.auctions.networkforgood.com/auctions/dessh-art-auction

Once hypersensitive to the texture of paint, Evelyn now embraces it — layering colour and movement with fearless expression.

Her journey mirrors this canvas: complex, resilient, and evolving.

Almost three years after diagnosis, she and her family continue to navigate disparities in access to appropriate health and social care.

This piece, accompanied by a bonus piece AND a “letter” from the artist herself, is offered in the hope that it inspires dialogue — and perhaps even change — toward equitable care and quality of life for children living with rare conditions.

THE DESSH FOUNDATION

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info@dessh.org       3 Higgins Drive   |  Vernon, NJ 07462

DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.

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