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Florida, USA
Dara was diagnosed at birth with other conditions, but it was not until March 2019 that she was diagnosed with DESSH. Dara loves giving love, listening to music, dancing, coloring, playing with dolls, and riding horses!
THE DESSH FOUNDATION
info@dessh.org 3 Higgins Drive | Vernon, NJ 07462
DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.