Doctor with Patients

DIAGNOSED WITH DESANTO-SHINAWI SYNDROME?

Welcome to the DESSH community

As a community of parents, those living with DESSH and their siblings, friends, and caregivers, we are uniquely bound together by a common thread. We are strengthened by our mutual experiences and the shared pursuit of solutions to the challenges inherent in WAC gene-related disorders. 

To join the community and keep up to date with research and news, click below and complete our form.