<![CDATA[DeSanto-Shinawi Syndrome]]>https://www.dessh.org/blogRSS for NodeWed, 07 Oct 2026 22:43:15 GMT<![CDATA[DESSH Scientific Tools Have Great Treatment Potential]]>https://www.dessh.org/post/dessh-scientific-tools-have-great-treatment-potential6a1ee9e0345fdf6c424e3616Tue, 02 Jun 2026 14:39:55 GMTCaitlin Piccirillo<![CDATA[DESSH Foundation's Impact in 2025]]>https://www.dessh.org/post/your-title-what-s-your-blog-about69c53983653657f03d5fad53Thu, 26 Mar 2026 14:08:51 GMTCaitlin Piccirillo<![CDATA[Repurposed Drug Study in DESSH Syndrome Update]]>https://www.dessh.org/post/update-on-clonazepam-study-in-dessh-syndrome69b01ecf00ff578fc8e910a4Tue, 10 Mar 2026 13:54:49 GMTCaitlin Piccirillo<![CDATA[Rare People - The Research Charity launches with the goal to support DESSH clinical trial in the UK.]]>https://www.dessh.org/post/rare-people-the-research-charity-launches-with-the-goal-to-support-dessh-clinical-trial-in-the-uk68ee907a6953122ce337f401Tue, 14 Oct 2025 18:15:47 GMTCaitlin Piccirillo<![CDATA[The DESSH Foundation hosts first-ever DESSH Clinic at Washington University in St. Louis]]>https://www.dessh.org/post/the-dessh-foundation-hosts-first-ever-dessh-clinic-at-washington-university-in-st-louis6442a9bf3310cc6a0c29f60fFri, 21 Apr 2023 15:20:31 GMTCaitlin Piccirillo<![CDATA[Why should my loved one participate in patient research?]]>https://www.dessh.org/post/research-participation6442a9bf3310cc6a0c29f610Fri, 21 Apr 2023 15:20:31 GMTCaitlin Piccirillo<![CDATA[CZI's Rare As One Project Accepting Grant Applications!]]>https://www.dessh.org/post/empowering-those-in-need-through-hands-on-charitable-projects6442a9bf3310cc6a0c29f611Fri, 21 Apr 2023 15:20:31 GMTCaitlin Piccirillo