DIAGNOSED WITH DESANTO-SHINAWI SYNDROME?

Welcome to the DESSH community

As a community of parents, those living with DESSH and their siblings, friends and caregivers, we are uniquely bound together by a common thread. We are strengthened by our mutual experiences and the shared pursuit of solutions to the challenges inherent in WAC gene related disorders. 

 

Address

3 Higgins Drive
Vernon, NJ 07462

Contact

+1 (718) 406-3842

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DESSH DeSanto-Shinawi Syndrome Corporation is recognized by the IRS as a 501(c)(3) tax-exempt public charity.