WHAT WE FIGHT FOR

The DESSH Foundation was established to raise awareness of DeSanto-Shinawi Syndrome (DESSH) among the medical profession and the general public, to advance research and education related to DESSH, and to provide a support-community for patients and families challenged by DESSH.

We aim to support patients challenged by DeSanto-Shinawi Syndrome by advancing research in pursuit of a cure through awareness and fundraising.

 

OUR BOARD OF DIRECTORS

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CAITLIN PICCIRILLO

President and Co-Founder

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JOSEPH PICCIRILLO

VP, Treasurer and Co-Founder

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AMANDA MURPHY

Secretary

 

PATRICIA CARDONA

Board Member

AMY MITCHELL

Board Member
Awareness Committee Chair

ED MOORE

Board Member

KERRY PEARCE

Board Member

STEPHEN PICCIRILLO

Board Member
Chief Finance Officer

MELISSA SIDEBOTTOM

Board Member

NAUSHEEN WASIM

Board Member
Patient and Family Committee Chair

COLLEEN TOSTI

Board Member, ex officio

 

OUR MEDICAL ADVISORY BOARD

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DR. MARWAN SHINAWI

Professor of Pediatrics, Division of Genetics and Genomic Medicine at Washington University School of Medicine


Clinical Geneticist, St. Louis Children's Hospital

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DR. AMANDA SMITH

Instructor, Division of Oncology, Department of Medicine, Washington University School of Medicine

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DR. CHEOL-HEE KIM

Professor, Chungnam National University
Director, Zebrafish Center for Disease Modeling